Palliative care for children and young people with life-limiting conditions is an active and total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on quality of life and support for the child and their whole family and includes the symptom management, provision of respite and care support through death and bereavement.
All children with palliative care needs require an individual approach that is supported by a multidisciplinary service team.
Hannah’s House collaborates with Perth Children Hospital and Silver Chain Palliative Care Services to deliver palliative care in the comfort and familiarity of your home. Together with your Palliative Care Team at PCH, we will contribute to a Care Plan that meets the wishes you have for your child’s quality of life. The Care Plan is based on your child’s illness, your lifestyle and the needs of your child and family. It communicates your choices and wishes to those who are caring for your child.
In some cases, a child’s NDIS Plan will allow supports to be continued through your child’s palliative journey or you can ask us about our pro-bono services.
Depending on your child’s condition and progression, it may be possible to have your child at home throughout their journey. There are some wonderful benefits to remaining at home including:
If you would like to know more about Paediatric Palliative Care, we recommend a wonderful booklet called ‘A Family Companion’ produced by Palliative Care Australia.
Recharging your batteries, spending time with other children, family and friends and simply having time to take care of your needs is highly recommended to support your health and wellbeing. Taking breaks from caring for your child can be vital to give you time to take care of yourself. Hannah’s House can help you plan ‘respite’ breaks where your child remains in the family home.
Your clinical team at Hannah’s House and Perth Children’s Hospital are here to discuss any of your needs and concerns and help provide the best care plan to support your child and family.
You can find out more by visiting our Respite Program.
Thinking about the end of your child’s life is hard. Families who have been through this challenging journey recommend that you make choices in advance of your child’s passing so when your child’s final days do come, you can concentrate on supporting each other, not making difficult decisions.
Planning ahead also means that you can explore all the options, and find out exactly what is possible, so you can make informed decisions. One option might be to plan for your child’s passing in the comfort and familiarity of the family home.
Hannah’s House collaborates with Perth Children Hospital and Silver Chain Palliative Care Service to provide care and support for you and your child at the end of life and in the following days. Our care can include 24 hour support, memory making and bereavement care allowing you to focus on your child.